Showing posts with label Asperger's. Show all posts
Showing posts with label Asperger's. Show all posts

Wednesday, December 3, 2014

Link about Space Launch; How much contribution has been made to the space Program by Autism?

http://www.businessweek.com/articles/2014-12-02/nasas-orion-test-flight-gets-us-closer-to-mars
Visual and spatial strengths!!  Plus, repeated patterns...ability to see patterns..
*********Often been found that engineers run in families.....autism too.
How much do we owe to autism with regard to the Space Program?
******Remember Temple Grandin's Grandfather invented the auto pilot for planes!!

Sunday, October 19, 2014

Movie Judge Reiterates My Son Has No One Once I'm Dead.

Tonight the movie, "Judge," reminded me what I face and feel with regard to what to do for my son.  You see I have no one for him to go to after my husband and I die.  His cousins are busy and have a full life of their own.  I asked one nephew if he would mind being over a trust.  This wouldn't mean he would have to live with my son or take care of him daily.  Only that he would assure he was taken care of by the place he was staying and finances.
My nephew said "No." Did this create hard feelings on my part?  Not at all.   I actually respect his directness and understand completely.
Never the less, the movie reminded me of my situation in being responsible for him.  Yet, how can I if I am dead?  Will he be left to fade into a group home with no relatives visiting. You see he also has no brothers or sisters.  I am fighting hard to make him independent.  I may have a good chance but those scales tip back and forth ever day.  It will be hard to predict for sure.
There is a special needs adult in the movie.  However, there are siblings to help with his needs later on in life.  I hadn't planned to take this away from the movie.  But you see I am having surgery tomorrow on my tongue.  I have a sore that hasn't healed.  I also now have another hard bump in the cheek of my mouth I forgot to tell the oral surgeon about.  Do I have cancer?  There is a good chance.  Maybe not.  I will find out from the biopsy.
10665724_1503012893272960_9087027957860208614_n           14 - 1
Yet, after the movie and during, it just hit home more that I have no way to have a 100% gurantee where my son will end up.  I don't mean to look to the negative. But with no way to assign a person to look over him, I can't accomplish this.
There are few agencies to accomplish dealing with special needs adults.  What quality of life will this leave those with no relatives that will be living in their time span to check on their care or needs?  This is a problem many of us parents face.
Tonight it was harder for me to deal with because of the added reality of facing issues. I am not being morbid.  Fearing death is not the issue.  What hurts the most is thinking of my son of being truly alone on Earth once his parents are gone.  How will he adjust to living in a world with those that can't understand him as well as family often does?

Monday, June 2, 2014

Honesty and humor; Mom you told me women have eggs. Autistics are concrete thinkers and honsest!

I am trying to remember all the things my son has said and done to add to my book. I want to share with you how autitisics are concrete thinkers and honest to a fault. 
Image
Image
When my son learned about biology at school he came home saying "You lied to me!"  
Starting in mid-sentence is nothing new for him when he is hyper.  This is espcially the behavior one gets from Tanner when he thinks he has been lied to by someone.  Which is worse when it is a person he trusts to level with him . Trust me I level with him to a fault.
"Okay son what are you talking about? Remember I haven't been with you all day! Take a deep breath and think about the words you want to use to tell me what I lied to you about please."  I have learned to be direct with Tanner and focus him.  This is no easy feat for a woman that Attention Defiect Disorder and traits of other disorders. 
"You told me women have eggs like chickens." Tanner says in a yes tan excited yell.
Ah, now I know what he is talking about.  I read him the book, Where Do Babies Come From?  The book uses the analogy of chicken's laying eggs.  How did I recover from this one fast?
Remember Tanner believed in what his mom told him and I also told him to respect what his teacher's taught him. He wanted an answer and fast.  
I was fast on my  feet that day.  I explained that women have eggs like chicken's but they are different in that they are liquid eggs.  I stated the book was a very easy explanation for young children but that women do have eggs like chickens they are in just a different form.
See how autsitic's are very concrete?  See how they do not like to be lied to?  Honest and concrete in their thinking, autistics can nail you if you are not careful.  
Although this is funny, let it be a word to the wise; be careful and ready for those questions later on from stories and explanations you use.  I wasn't.  I got caught off guard and landed on my feet barely.  

Thursday, December 26, 2013

INFORMATION KITS ON PREMATURE INFANTS FOR PARENTS AND HOSPITALS

My goal is to inform.  Bragging is at the bottom of that list.  I wish I had time to improve on my journalistic style but may later.  I feel getting to the point on this information is better for all involved.
I was blessed to come across this information from newsletters and only plan to pass it along.
Please understand that none of this is for diagnosis, treatment or prevention.  Please see your healthcare provider for all your heealthcare needs.
Available for download from the NIH;
     >**Named “Transitioning Newborns from NICU to Home: A Resource Toolkit”   Can           be found in PDF form on the web named nicutoolit.pdf
   > Transitioning Newborns from NICU to Home Family Information Packet.  Can be              found on web in PDF form under nicupacket.pdf
   >Beginnings Guides: Beginnings Pregnancy Guide & Beginnings Parents Guide                Evidence Base and Guidelines for Effective Use
Please share.  The goal is to make all people more informed.
This is a short to the point blog informing people about resources.  Style of writing is brief and to the point.  I hope those reading this understand. My thoughts are that people don’t want a lot of extra’s but just the information!